ReferIndia News Urgent Plea to Save Lives: Advocates Demand Action for Rare Disease Funding

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Urgent Plea to Save Lives: Advocates Demand Action for Rare Disease Funding

Published on: Nov. 5, 2025, 5:34 p.m. | Source: Devdiscourse

Advocacy groups urge India's Chief Justice and Prime Minister to ensure sustainable funding for rare disease patients. Many children face life-threatening delays as financial aid caps are exhausted, despite prior court orders for increased support. The call for intervention seeks to prevent further avoidable loss of life.

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